A Blind Spot in Women's Health Measurement

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Gynecological conditions affect billions

Incontinence
Endometriosis
Painful periods
Menopause symptoms
Pelvic pain
PCOS
Fibroids
Vulvodynia
Morning sickness

These conditions are common. They shape daily life around the world.

The Global Burden of Disease Study guides health priorities worldwide

Since 1990, the GBD has tracked 371 conditions across 204 countries.

It has famously elevated previously overlooked conditions.

Low back pain
Migraines
Depression

What Gets Counted Gets Funded

Measured Burden
Research Funding
Treatments & Cures

Conditions that aren't counted don't get prioritized—and don't get solved.

So how does global health measurement count gynecological conditions?

Global Gynecological DALYs (2021)

Non-cancerous conditions, in millions

Other gyn. diseases
15.8M (57%)
Premenstrual syndrome
8.1M (29%)
Endometriosis
2.0M
PCOS
0.6M
Female infertility
0.6M
Genital prolapse
0.4M
Uterine fibroids
0.1M

GBD 2021, Institute for Health Metrics and Evaluation

Is PMS really the single biggest gynecological condition?

Other gyn. diseases
15.8M (57%)
Premenstrual syndrome
8.1M (29%)
Endometriosis
2.0M
PCOS
0.6M
Female infertility
0.6M
Genital prolapse
0.4M
Uterine fibroids
0.1M

GBD 2021, Institute for Health Metrics and Evaluation

?

Several common conditions are absent

Urinary incontinence, dysmenorrhea, vulvodynia, and menopause symptoms are missing from these estimates.

Let's take a simple example

Urinary incontinence—a condition absent from GBD estimates.

27%

of US women over 50 report incontinence

...requiring protective garments. Yet this condition is absent from the Global Burden of Disease estimates.

University of Michigan National Poll on Healthy Aging, 2018

If incontinence were counted, it would exceed all specified conditions

US DALYs comparison (annual)

298K
PMS
(current largest)
~350K
Incontinence
(if counted)

Assuming a mild disability weight, incontinence alone would represent the largest specified gynecological burden.

Bilinski & Emanuel, The Lancet 2026

What's going on here?

Three sources of systematic underestimation

Source of Underestimation #1

Electronic health records miss conditions

1
Incontinence is often not reported to physicians
2
Endometriosis requires diagnostic surgery to appear in GBD estimates
3
Dysmenorrhea is rarely coded in clinical encounters

This contrasts with low back pain and PMS, which GBD quantifies from survey self-reports.

Source of Underestimation #2

Some conditions have no disability weight

0
Disability weight for vulvodynia
0
Disability weight for dyspareunia

Without a disability weight, a condition contributes zero DALYs regardless of prevalence.

Source of Underestimation #3

"Normal" vs. "Unhealthy"

If leaking urine after childbirth is considered normal, it might not be deemed unhealthy—despite its impact on wellbeing.

What gets counted gets funded—
and eventually, solved

Gynecological conditions deserve careful accounting.

Read in the Lancet One-Pager
GBD Results Tool

Bilinski & Emanuel, The Lancet 2026